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Tiruvalla Medical Mission (TMM) - Oncology (Cancer) & Nuclear Medicine

This site has been developed for Cancer Patients & their Relatives under the 'Right of information for Patients'.

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Patient's Right of Information
CANCER - ALL YOU NEED TO KNOW
1. Accurate Diagnosis  >  6. Patient's Right of Information
6. Patient's Right of Information
 
 
Patients right of information
The Right to Information for Patients is a fundamental principle in healthcare that ensures patients have access to relevant and accurate information regarding their health, treatment options, and medical care. This right is part of a broader framework often referred to as Patient Rights, which are designed to protect the dignity, autonomy, and informed consent of individuals seeking medical care.
 
Key Aspects of the Right to Information for Patients
 
  1. Access to Medical Records: Patients have the right to view and obtain copies of their medical records, including laboratory results, imaging studies, and doctors’ notes. This ensures transparency and allows patients to be active participants in their healthcare decisions.
  2. Clear Explanation of Diagnosis: Patients are entitled to a clear, understandable explanation of their diagnosis and any medical conditions identified. Healthcare providers should communicate in a way that the patient comprehends, avoiding medical jargon or providing explanations in the patient’s preferred language.
  3. Informed Consent: Before any treatment or procedure, patients must be informed about the nature of the treatment, its potential risks, benefits, and alternatives. The patient’s consent should be obtained only after they have a full understanding of the information provided. This is a core element of respecting patient autonomy.
  4. Information on Treatment Option: Patients have the right to be informed about all available treatment options, including the risks, benefits, and potential outcomes of each option. This empowers patients to make decisions that align with their values and preferences.
  5. Details of Medications: Patients should be informed about the medications prescribed, including the purpose, possible side effects, and any instructions for proper usage (e.g., dosage, frequency, food restrictions). This reduces the risk of medication errors and increases adherence to the prescribed regimen.
  6. Right to Know the Healthcare Team: Patients have the right to know the names, roles, and qualifications of the healthcare professionals involved in their care. This builds trust and helps patients understand who is responsible for different aspects of their treatment.
  7. Explanation of Medical Costs: Patients should receive information about the costs of treatment, including potential charges for procedures, hospital stays, medications, and other services. Transparent communication about financial aspects helps patients plan and reduces the risk of unexpected bills.
  8. Communication of Prognosis: Patients have the right to be informed about their prognosis, including the expected course of the disease, possible complications, and realistic outcomes. This helps patients and families make informed decisions about future care and end-of-life planning if necessary.
 
Importance of Following Guidelines
 
Adhering to recognized patient rights and information guidelines, such as those provided by the World Health Organization (WHO), National Guidelines, or specific frameworks like the NCCN Guidelines in oncology, is crucial for several reasons:
  • Enhances Patient Safety: Reduces the risk of errors and increases the quality of care.
  • Promotes Trust: Transparent communication builds trust between patients and healthcare providers.
  • Legal Protection: Following established guidelines helps healthcare institutions comply with legal requirements and reduces the risk of litigation.
 
Legal Framework
 
In many countries, the Right to Information for Patients is supported by legislation:
  • In the United States, the HIPAA (Health Insurance Portability and Accountability Act) protects patients’ access to their health information.
  • In India, the Clinical Establishments Act and guidelines by bodies like the Medical Council of India (MCI) emphasize the right of patients to access information about their care.
  • In the UK, the National Health Service (NHS) has a comprehensive framework for patient rights, including the NHS Constitution, which enshrines the right to information.
 
Challenges in Implementing the Right to Information
 
  • Healthcare Literacy: Patients may have difficulty understanding complex medical information.
  • Cultural Barriers: Language and cultural differences can hinder effective communication.
  • System Limitations: In some healthcare systems, lack of time, resources, or digital infrastructure can make it challenging to provide patients with all the necessary information.
 
The Right to Information for Patients is a cornerstone of ethical medical practice and patient-centered care. It ensures that patients are treated with respect and dignity, empowering them to make informed decisions about their healthcare. Healthcare providers must prioritize clear, honest, and compassionate communication to uphold this right and improve the overall patient experience.
CANCER - ALL YOU NEED TO KNOW
Information for New Patients
New Cancer Patients
Podcasts for cancer
Podcasts for cancer

Insurance Schemes
Insurance Schemes
Patient's Right of Information

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